โš  If you are in immediate danger, call 999. Your safety comes first.
Get help now

Support, Resources & Practical Guidance

How to get assessed, EHCP and IDP guidance, legal rights, Access to Work, PIP, university support and driving โ€” for individuals, families, schools and young people, across England and Wales.

Last reviewed: 13 August 2026
This is a fast-moving area. Assessment access, SEND law and benefits rules all changed during 2025 and 2026, and further change is in progress. Everything below carries the review date above. Where a decision matters, check the current position with the organisation directly before relying on it.

Where do I start?

Choose whichever feels closest to where you are right now.

I need support with neurodiversity

A plain-English guide for England & Wales โ€” pathways, templates and evidence

Whether you think you may be autistic, have ADHD, a learning difference, or are supporting a child, this guide walks through the assessment pathway in plain English, with copy-ready templates and evidence checklists.

I think I’m autistic

Autism โ€” next steps

Autism is a different way of thinking and sensing, not a defect. The aim is access, not correction. Many people are identified later in life, particularly women and anyone who learnt early to mask. There is no wrong time to seek understanding.

Evidence to gather

  • A one-page impact summary with three to five concrete examples of daily difficulty
  • A two to four week diary of experiences and patterns
  • School reports, particularly comments on behaviour, concentration or social interaction
  • Written observations from a parent, partner or carer
  • Any previous assessments or professional letters
I think I have ADHD

ADHD โ€” next steps

ADHD affects attention regulation, impulse control and activation. It is a difference in how the brain prioritises and shifts between tasks โ€” not a character flaw, and not a matter of willpower.

Evidence to gather

  • A two to four week impact diary tracking difficulties and patterns
  • School reports mentioning concentration, focus or behaviour
  • Examples of impact on work, education, relationships and daily living
  • Observations from a partner, family member or colleague

Copy-ready templates

GP letter

GP referral request

For requesting a referral for neurodevelopmental assessment, including Right to Choose wording for England.

Copy template โ†’
School or college

School adjustments request

For requesting a meeting with a SENCo (England) or ALNCo (Wales) about support, adjustments and assessment.

Copy template โ†’
Workplace

Workplace adjustments request

For requesting reasonable adjustments under the Equality Act 2010, with or without a formal diagnosis.

Copy template โ†’
Please note: the quizzes and checklists in the full guide are for self-understanding. They cannot replace professional assessment. Self-identification is valid. Assessment availability and process differ between England and Wales, and change over time.

Getting assessed

NHS, Right to Choose and private โ€” as things stand in August 2026

Waiting times: NHS neurodevelopmental assessment waits run to several years in many areas. You do not have to simply wait, but be aware that the alternative routes have also tightened considerably during 2025 and 2026.

England โ€” Right to Choose

  • In England you can ask your GP to refer you to any NHS-commissioned provider, not only the local one. This remains a legal right under the NHS Choice Framework
  • But it has become much harder to use. Through 2025 and 2026, many Integrated Care Boards introduced funding caps and activity limits, and referrals were paused entirely in at least nine areas
  • In affected areas, GPs have been instructed not to process new Right to Choose referrals, and some providers have stopped accepting them by postcode
  • ICBs cannot lawfully abolish the right by policy, but they can and do cap the funding behind it
  • If you are refused, ask for the reason in writing, and escalate through PALS, your ICB, or a patient choice complaint to NHS England
  • Check current provider availability for your postcode before assuming it is open

Wales โ€” the NHS pathway

  • Right to Choose does not apply in Wales. Referral is through your GP to the health board pathway
  • In North Wales this is Betsi Cadwaladr. Adults are usually referred via the community mental health team or directly to the neurodevelopmental service, depending on locality
  • For children: referral via GP, school or health visitor to community paediatrics or S-CAMHS
  • Waits vary considerably between health boards and have been long across Wales
  • The National Autistic Society Cymru and local ALN services can advise on the current route
Step 1

See your GP

Bring a written list of specific examples of how this affects daily life. Concrete impacts land better than general description โ€” work, relationships, household tasks, school. Ask directly for a referral for neurodevelopmental assessment, and ask for the outcome in writing.

Step 2 (England)

Ask about Right to Choose

Ask your GP whether Right to Choose referrals are currently being accepted in your ICB area, and to which providers. Check the provider’s own site for postcode availability before the appointment โ€” several have paused intake area by area.

Private assessment

Going private

Faster, but costly โ€” commonly several hundred to a few thousand pounds depending on the assessment type and provider. Check current fees directly. A private diagnosis is accepted for most employer and education purposes, but check whether your GP will enter shared care for medication before you commit, as many now decline.

Important

You do not need a diagnosis to access support

Under the Equality Act 2010 you may be entitled to reasonable adjustments at work or in education without a formal diagnosis, where your difficulties have a substantial and long-term adverse effect on normal day-to-day activities. Support should follow identified need. Self-identification is also valid in community and peer support settings.


EHCPs (England) & IDPs (Wales)

How to apply, what to expect, and what to do if refused

An EHCP is a legally binding document setting out a child’s special educational needs and the support the local authority must provide. In Wales the equivalent is an Individual Development Plan under the Additional Learning Needs and Education Tribunal (Wales) Act 2018.

Reform is coming, but not yet. The Schools White Paper Every Child Achieving and Thriving was published in February 2026 and proposes major changes to the SEND system in England, including Individual Support Plans and a tiered support structure. Legislation is expected through an Education for All Bill. No changes to EHCP support are expected before at least September 2030, and the current law continues to apply in full. If you need an EHCP now, apply now.

Requesting an EHC needs assessment (England)

  • A parent, a young person over 16, or a school can request an assessment from the local authority
  • Write formally to the SEND team stating that you are requesting an EHC needs assessment under the Children and Families Act 2014
  • The LA has six weeks to decide whether to assess
  • If refused, you can appeal to the SEND Tribunal
  • IPSEA provides a free model request letter

The 20-week timeline

  • Week 0 โ€” request received
  • Week 6 โ€” decision whether to assess
  • Week 16 โ€” draft EHCP issued
  • Week 20 โ€” final EHCP issued
  • Deadlines are frequently missed. Keep dated records of every contact
  • Delay beyond the statutory timeline can be challenged through the LA complaints process and then the Local Government and Social Care Ombudsman
If refused

You have the right to appeal

  • Obtain a mediation certificate โ€” required before tribunal in most cases
  • Appeal to the First-tier Tribunal (SEND)
  • IPSEA and SOS!SEN offer free support with appeals
  • A high proportion of appeals succeed. Being refused first time is common and is not the end of it
  • Note there are strict time limits โ€” usually two months from the decision. Do not let it drift
Wales โ€” ALN Act 2018

Individual Development Plans

  • Wales replaced Statements of SEN with IDPs, phased in from September 2021. All remaining Statements should have transferred by August 2025
  • Children and young people with ALN from 0โ€“25 are entitled to an IDP
  • For most learners the school maintains the IDP; the local authority does so for more complex needs
  • Appeals go to the Education Tribunal for Wales, not the SEND Tribunal
  • The number of learners identified with ALN in Wales has fallen sharply since the reforms, and the Welsh Government has launched a review. If your child has lost support during transfer, that is worth challenging
  • SNAP Cymru provides free advocacy for families in Wales

IPSEA

Free, legally based advice for families in England. Model letters, tribunal support and training.

ipsea.org.uk โ†’

SOS!SEN

Free SEND helpline and support for parents navigating EHCPs, tribunals and local authority disputes.

sossen.org.uk โ†’

SNAP Cymru

Free advocacy and support for children and young people with ALN and their families in Wales.

snapcymru.org โ†’

School avoidance

Emotionally Based School Avoidance (EBSA)

EBSA describes school avoidance driven by anxiety, overwhelm or sensory and social distress โ€” not defiance and not laziness. It is common in neurodivergent children, particularly those who have been masking successfully at school until they cannot any longer.

Why it happens

  • Sensory overload in an overwhelming environment
  • The demands of navigating unwritten social rules
  • Exhaustion from masking across the school day
  • Previous bullying, misunderstanding or negative experience
  • Anxiety about academic performance or failure
  • A mismatch between the child’s needs and what school provides

What helps

  • Avoid punitive approaches โ€” fines and pressure increase anxiety and worsen avoidance
  • Prioritise safety and connection before attendance targets
  • Reduce demand gradually and collaboratively with the child
  • Address the unmet need underneath โ€” sensory adjustments, social support, anxiety
  • Involve the SENCo or ALNCo and request a multi-agency meeting
  • Ask the local authority for its EBSA guidance โ€” most now have one


Government scheme

Access to Work

Access to Work provides grants to help disabled and neurodivergent people start or stay in work. Many people have never heard of it. It can fund coaching, assistive technology, support workers and adaptations.

What it can fund

  • ADHD or autism workplace coaching
  • Assistive technology โ€” screen readers, speech-to-text, noise-cancelling headphones
  • Mental health support
  • A support worker or job coach
  • Adaptations to workspace or equipment

Applying

  • Apply online at gov.uk/access-to-work
  • Available to employees and self-employed people
  • A formal diagnosis is not always required
  • Your employer does not need to be involved in the initial application
  • Waiting times for assessment and payment have been long โ€” apply early and keep records

PIP & financial support

What you may be entitled to, and how to claim it

Many neurodivergent adults are entitled to Personal Independence Payment but either do not apply, or are refused because assessors do not understand how these conditions affect daily functioning.

The single most important point

Describe your worst day, not your best

PIP asks how you manage a range of daily activities. The most common mistake is describing what you can do, rather than what it costs you to do it and how unreliably you manage it.

  • Describe the impact on a bad day, not a good one
  • Describe what actually happens when you attempt each activity โ€” the anxiety, the exhaustion, the shutdown, the abandoning of it halfway
  • Include the cost: sensory overwhelm, emotional dysregulation, executive function failure
  • Reliability matters. “I can do it sometimes” is not the same as being able to do it repeatedly, safely and in a reasonable time โ€” and the rules take account of that
  • Gather supporting evidence: GP letter, diagnosis letter, any professional reports

What PIP covers

  • Daily living โ€” self-care, preparing food, managing medication, communicating, engaging with others, managing money
  • Mobility โ€” getting around, including where the barrier is psychological distress rather than physical
  • You do not need to be housebound or have a physical condition to qualify
  • PIP is not means-tested and is not affected by savings or earnings
  • Note: eligibility rules have been the subject of active political debate. Check the current criteria on gov.uk before applying

If you are refused

  • Request a Mandatory Reconsideration, normally within one month of the decision
  • If still refused, appeal to the First-tier Tribunal. Success rates at tribunal are high
  • Citizens Advice, Disability Rights UK and local welfare rights services can help, free
  • Ask for a copy of the assessment report โ€” it often contains the reasoning you need to challenge

Citizens Advice

Free advice on PIP, Universal Credit and all benefits, with local offices and a national service.

citizensadvice.org.uk โ†’

Disability Rights UK

Factsheets and advice on disability benefits and rights.

disabilityrightsuk.org โ†’

gov.uk โ€” PIP

The official guidance and application route, and the place to check current eligibility rules.

gov.uk/pip โ†’

University & Disabled Students’ Allowance

Neurodivergent students in higher education are entitled to DSA โ€” funding many students never hear about.

What DSA funds

Support available

  • Assistive technology โ€” text-to-speech, speech-to-text, mind-mapping software
  • Specialist ADHD or autism mentoring, and study skills support
  • Adapted library resources and alternative format materials
  • Travel costs where standard transport is inaccessible
  • Exam adjustments are arranged separately, through your university’s disability service
Applying

The process

  • Apply through Student Finance England or Student Finance Wales, ideally before your course starts
  • You need evidence โ€” a diagnosis letter, GP letter or educational psychologist report
  • You will have a Study Needs Assessment to identify what would help
  • Suppliers are then arranged to provide equipment and support
  • Your university disability service can help you through it
  • DSA does not have to be repaid

Legal obligation

Driving & the DVLA

There may be a legal duty to tell the DVLA about a neurodevelopmental condition. The rules turn on whether the condition affects your ability to drive safely โ€” not simply on having a diagnosis. Getting it wrong can invalidate your insurance.

The test

  • You must tell the DVLA if a condition affects your ability to drive safely, or if it worsens
  • Having ADHD or being autistic does not in itself disqualify anyone from driving
  • Medication is relevant where it affects alertness, concentration or reaction
  • Not notifying when required is a criminal offence and can invalidate insurance
  • Being reviewed by the DVLA is not the same as losing your licence โ€” most people continue driving

What to do

  • Check the current position on the gov.uk health conditions Aโ€“Z, which lists what must be reported for each condition
  • Discuss with your GP or prescriber whether they consider your condition or medication affects driving
  • If genuinely uncertain, notify โ€” the risk of not notifying is greater than the risk of notifying
  • The DVLA may request a report from your GP or specialist
  • Keep a copy of anything you send

Local assessment pathways

North Wales, Shropshire and Telford & Wrekin

Living on the border? Which system you can use depends on where your GP is registered, not where you live. A Welsh GP means the Betsi Cadwaladr pathway and no Right to Choose. An English GP means MPFT and, in principle, Right to Choose.
North Wales

Betsi Cadwaladr

Covers Wrexham, Flintshire, Denbighshire, Conwy, Gwynedd and Anglesey. Referral is through your GP; Right to Choose does not apply.

  • Adults: GP referral into the health board pathway. Route varies by locality โ€” ask your GP which service covers your area
  • Children: GP, school or health visitor referral to community paediatrics or S-CAMHS
  • SNAP Cymru provides free ALN advocacy across Wales
  • C.A.L.L. Wales, 0800 132 737, free and 24/7, can signpost while you wait
Shropshire, Telford & Wrekin

Midlands Partnership (MPFT)

Neurodevelopmental services are provided by MPFT. Referral through your GP.

  • Adults: GP referral to the MPFT neurodevelopmental service
  • Children and young people 0โ€“25: BeeU, the emotional wellbeing and mental health service, which includes neurodevelopmental assessment
  • Right to Choose: available in principle, but check current ICB position and provider availability for your postcode first
  • Urgent mental health support, 24/7: 0808 196 4501

For young people

Resources written for children and young people โ€” accessible, honest, and free of jargon.

Young person’s guide

Understanding your neurodivergent brain

A guide to what autism, ADHD and other learning differences actually mean โ€” and why your brain is not broken, just wired differently.

School support

Getting support at school

What your rights are, what an EHCP or IDP means, how to talk to teachers, and what to do if school isn’t working for you.


Parents, carers & individuals

Practical guidance, evidence workbooks and support tools

The workbooks below are designed to help you build a clear, dated record of daily impact โ€” the evidence that referrals, assessments and EHCP or IDP requests actually turn on. Request any of them by email.

๐Ÿ“‹

What every parent & professional should understand

Communication, expectations and support strategies for neurodivergent children and adults โ€” adapting environments, reducing conflict, building on strengths.

Request by email โ†’
๐Ÿ“

Autism evidence workbook โ€” parents

A guided workbook for recording daily examples, triggers, patterns and impact. Useful for appointments, referrals and EHCP or IDP processes.

Request by email โ†’
๐Ÿ“

ADHD evidence workbook โ€” parents

The same structured approach for ADHD โ€” supporting evidence gathering for assessment and school support planning.

Request by email โ†’
๐Ÿ›ก

Universal self-help guide โ€” coping strategies

Practical strategies covering sensory regulation, emotional dysregulation, routines, executive function support and self-advocacy.

Request by email โ†’
โš–

Neurodivergent legal rights guide

The Equality Act 2010, reasonable adjustments in work and education, and how to challenge discrimination.

Request by email โ†’

For schools, colleges & early years

Evidence templates, classroom toolkits and professional guidance

๐Ÿ“Š

ADHD evidence workbook โ€” schools

Evidence-gathering template aligned with education support planning. Helps staff record observations, triggers and patterns for EHCP or IDP processes.

Request by email โ†’
๐Ÿ“Š

Autism evidence workbook โ€” schools

The equivalent template for autism โ€” structured observation and documentation for assessment and multi-agency meetings.

Request by email โ†’
๐Ÿซ

Autism-friendly classroom toolkit

Classroom strategies, sensory adjustments, communication supports and behaviour-as-communication guidance for teachers, TAs, SENCos and ALNCos.

Request by email โ†’
๐Ÿ‘ถ

Early years neurodiversity guide

For early years practitioners supporting neurodivergent children aged 0โ€“5 โ€” sensory differences, communication, transitions and working with families.

Request by email โ†’
๐Ÿ“š

Solihull Approach

An NHS-developed, evidence-based model helping adults understand behaviour as communication, drawing on child development, attachment theory and neuroscience.

Read more โ†’
Share this page

Discover more from NAAVoices.com

Subscribe to get the latest posts sent to your email.

A note on identity

NAAVoices was originally founded under a pseudonym to protect my identity. With time and healing I have come to realise that reducing stigma does not come from staying hidden — it comes from openness. Domestic abuse, mental health difficulties, and the need for advocacy happen to people from every walk of life. Speaking openly is an important part of normalising these conversations so that others feel safe to do the same.